Period: 2015 - 2016

Researchers

Verónica Dussel, Luciano G. Uzal

Summary

The provision of high-quality palliative care is a mandate of the World Health Organization. Patient records make it possible to monitor the quality of care and establish standards. Pediatric palliative care (PPC) providers do not have agile, accurate, or efficient recordkeeping systems. A digital registration system with national scope was developed. The objective of ReCuPPeRA is to build a centralized electronic data repository on a national scale that: a) documents patients assisted by CPP providers belonging to the public health system of the Argentine Republic, b) serves in turn to create databases own in hospitals, and c) facilitate the clinical follow-up of each patient. In this research, a pilot study is carried out in three hospitals in the Argentine Republic that have a Pediatric Palliative Care service and that have different characteristics regarding the volume of patients, type of hospital (general pediatric), type of referral, composition of equipment and care modality

Type of study

This is a pilot, open and longitudinal study. The methodological approach is mixed, since a combination of quantitative and qualitative methods are used.

Finance

Ministry of Health. Carrillo-Oñativia Scholarship